A profound true, raw and honest story. Nixon was born with Gauchers Type 2 disease, which is extremely rare. When he was diagnosed, the doctors were able to count on their hands the number of children in the United States who currently have it. It is the lack of an enzyme that your body needs to survive. Without it, it causes children to become disabled and not live past the age of 3 years old. Nixon now makes the enzyme on his own and just turned 4. This story occurs in a world that most people are not affected by, which is why it is so important to share Nixon’s story to show how love and determination makes all the difference in the world. Kristin Skenderi’s “Holding Hope in Your Hands” will capture your attention from the very first page. From the moment you start reading the book, you realize that relentless love and unimaginable resiliency are the pathways to stay on course. After reading, you will be left somewhat speechless. You will go through so many emotions reading this book that you will feel you are right there with them. This book will be impossible to put down!!
Hearing a doctor say, “Your child is going to die,” was the worst moment in Kristin Skenderi’s life. Luckily, she is an eternal optimist and has never been one to take “no” for an answer. “Every time a doctor tells me that my child is going to die, I reply, ‘I hear what you are saying, but that is not going to happen. Until I have exhausted every single option in this world, I will not give in.’ From that moment on, I keep it in the back of my mind. And every time I hear it, it just gives me the drive to fight harder.” Wife and Author, Kristin Skenderi, is also Champion Mom for son, 3-year-old, Nixon Skenderi. “Even when I was younger with anyone who was sad or sick, my response was, ‘Okay, well, it happened; how do you fix it?’ A lot of people get hung up on the ‘why or how did this happen?’ I say, ‘who cares?’ It happened. It doesn’t matter, lets find a way to just fix it.” After growing up in Des Plaines, Illinois, Kristin graduated from Illinois State University driven to achieve great success in sales. She worked very hard at it and excelled amongst her colleagues. Her high school classmate, Ozzie Skenderi, graduated from Western Illinois, and the two were married in 2012. To find the ‘right solutions, ‘ Kristin asks questions and takes copious notes. “I think we live in a world today that gives us so many options. We just have to keep looking. I always argue my way until I feel that I have found the right solutions.” There has never been a time when Kristin and Ozzie have felt they were going to throw in the towel and give up. They always wondered about how or if they would know. A good friend whose son had the same diagnosis shared, “You will just know. I can’t even describe it to you. Nixon will tell you. He will tell you, ‘It’s time. I’m done.’ And you will know.” “Every time we try something new or we are going through a process, I look at Nixon’s face, his eyes, his demeanor. For the more difficult decisions, I say, ‘You have to guide me through this.’ Never once has he told me to stop. His strength and will to live drives me every day. He is the strongest person I have ever known.”